As we wrap Thanksgiving weekend, I find myself reflecting on the people and causes that mean the most to me.
One that is especially close to my heart is the INADcure Foundation and the incredible families they support. Their mission is to bring hope, treatments, and ultimately a cure to children affected by INAD.
My niece, Ariya, has been battling INAD, a complicated neurodegenerative disorder, since she was born.
INAD is an ultra-rare disorder. It is estimated that INAD affects approximately 150 children worldwide.
The progression of INAD is usually rapid after the initial onset of symptoms. Many affected children never learn to walk or lose this ability shortly after learning it.
During the last stages of the disease, severe spasticity (tight or stiff muscles), progressive cognitive decline, and problems with vision have a large impact on daily life. Unfortunately, many children with INAD do not live beyond age 10.
My cousins and the community they helped build inspire me every day with their strength, resilience, and determination. Their journey reminds me of what truly matters: compassion, connection, and showing up for one another in meaningful ways.
In this season of gratitude, I am thankful for the progress being made, the families who continue to fight with courage, and the supporters who help move this mission forward. And Iām grateful for you. For reading this and for being part of my life.
As we look ahead to this year's Giving Tuesday, 12/2/2025, I invite you to join me in supporting the INADcure Foundation. Your generosity, whether through a donation or simply spreading awareness, will help fuel the breakthroughs these families are waiting for.
The Shakhawala family will be matching donations 1:1 up to $5,000.
Mark your calendar, save this link, and join me in supporting a great cause.
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